Alström Syndrome UK

With your help, we have hope

Alström Syndrome UK (ASUK) provides support for those affected by Alström Syndrome, their carers and professionals working with them.

  • We offer help with gaining access to medical assessments with doctors who have gained expertise in understanding the many manifestations of Alström Syndrome.
  • We provide quarterly integrated clinics for adults and children.
  • We offer help and advice with educational, social and benefit problems.
  • We offer support to families from families who live with Alström Syndrome.
  • We publish a quarterly newsletter.
  • We provide an annual family Conference at little or no cost to those living with Alström Syndrome.
  • We raise funds for research into Alström Syndrome.


Recent projects


  • Europe-wide, EU-funded registry of three rare, life-threatening diabetes syndromes including Alström Syndrome and Bardet-Biedl syndrome
  • Aims to improve awareness, understanding and treatment of the conditions for health professionals, patients and their families
  • 3 year project, started 1 January 2011
  • Click here to read more about the EURO-WABB project



  • Street: 14 Hellaby Hall Road
  • Postcode: S66 8HL
  • City: Hellaby, Rotherham
  • State: Yorkshire
  • Country: United Kingdom


  • Telephone: 01709 210151
  • E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.