Bardet-Biedl Syndrome UK

BBS UK supports nearly 500 people with Bardet-Biedl Syndrome, their families and carers.


  • Provide information
  • Provide information booklets
  • Produce newsletters and conference reports
  • Hold an annual family conference
  • Organise activity events and family days
  • Support BBS Specialist Multi-Disciplinary Clinics
  • Co-operate with research relevant to the Syndrome


  • Street: 1 Blackthorn Avenue
  • Postcode: TN4 9YA
  • City: Southborough, Tunbridge Wells, Kent
  • Country: United Kingdom


  • Telephone: 07805 685342, 01892 685311
  • E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.