Usher Syndrome Coalition

Working to find a cure for Usher syndrome, the most common cause of combined deafness and blindness

The Usher Syndrome Coalition is working to raise awareness and accelerate research, while providing information and support to impacted individuals and families. We strive to be the most comprehensive resource for the Usher syndrome community, bridging the gap between researchers and families.


  • Street: 2 Clock Tower Place, Suite 418
  • Postcode: MA 01754
  • City: Maynard
  • State: Massachusetts
  • Country: United States


  • Telephone: +1 978 637-2625
  • E-Mail: This email address is being protected from spambots. You need JavaScript enabled to view it.