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News from the Ciliopathy Alliance

Two top cilia researchers dedicated to ending PKD honoured with Lillian Kaplan PKD Prize

on Thursday, 19 March 2015. Posted in Polycystic Kidney Disease

The 2015 recipients of the Lillian Jean Kaplan International Prize for Advancement in the Understanding of Polycystic Kidney Disease (PKD) are Dr Peter Igarashi and Dr Gregory J. Pazour.

The doctors received their prize in person at the World Congress of Nephrology in Cape Town in March 2015. In addition to the $50,000 cash prize, a citation depicting the winner's work and a Steuben crystal sculpture was presented.

Ciliopathy Alliance receives Awards for All Grant to Develop 3-Year Strategic Workplan

on Sunday, 20 July 2014.

cmyk big pinkThe Big Lottery’s Fund Awards for All programme has awarded the Ciliopathy Alliance a grant of £9,400 to help further its mission to improve the quality of life of children and adults born with some of the world’s rarest, incurable life-threatening diseases - known collectively as ciliopathies.

Alström Syndrome UK awarded EURORDIS Patient Organisation 2013

on Monday, 11 March 2013. Posted in Alström Syndrome

2013-02-26-kay-parkinson-eurordisOn the 26th February 2013, Kay Parkinson and Kerry Leeson-Beevers attended the second EURORDIS 'Solidarity and Hope for Rare Disease Patients throughout Europe', Black Pearl Gala Dinner in Brussels, where Alström Syndrome UK was awarded EURORDIS Patient Organisation Award 2013.

Ciliopathy Alliance Awarded Jeans for Genes Grant

on Tuesday, 01 May 2012.

The Ciliopathy Alliance is delighted to have been awarded a grant of £25,000 from Genetic Disorders UK, the national charity that organizes Jeans for Genes Day.

This donation will be used to fund a Family Conference 31 May to 2 June 2013.

PKD International Alliance Launched

on Friday, 10 June 2011. Posted in Polycystic Kidney Disease

Patient groups representing 12.5 million people with polycystic kidney disease (PKD) from around the world have formed an international alliance, whose purpose is to enhance the lives of everyone affected by PKD.

PKD International is a non-profit, non-governmental association (NGO), based in Geneva (Switzerland).