Alström Syndrome UK awarded EURORDIS Patient Organisation 2013
On the 26th February 2013, Kay Parkinson and Kerry Leeson-Beevers attended the second EURORDIS 'Solidarity and Hope for Rare Disease Patients throughout Europe', Black Pearl Gala Dinner in Brussels, where Alström Syndrome UK was awarded EURORDIS Patient Organisation Award 2013.
The EURORDIS Award is in recognition of extraordinary work and commitment to patient support and advocacy for people with Alström Syndrome.
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 561 rare disease patient organisations in 51 countries covering over 4000 diseases.
(Photo shows Kay Parkinson, CEO ASUK, and Avril Daly, VP EURORDIS)
- Tags: Alstrom