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Patient Involvement

The 7th Framework Programme of the European Commission funded a three year study called 'PatientPartner', which looked closely at the part that patient organisations play and are willing to play in clinical trials. The project also focussed its attention on clinical trials with children, the use of biobanks and ethical issues.

A patient information guide and a guide for sponsors and researchers were also developed to help give rise to more effective partnerships in clinical trials and clinical research.

A link to the guides is below.

http://www.patientpartner-europe.eu/en/project-outcomes/patient-organisation-guide