1st Webinar 11th November 2023
cilia, pcd, ciliopathies, research, collaboration, rare disease, Ciliopathy Alliance, BBS, BardetBiedlSyndrome, Alstrom, ARPKD, pkd, usher, jeune, joubert, RP
We held our first Webinar on 11th November 2023 via Zoom - videos of the presentations can be found here:-
- Cilia and the role they play in the human body from Amelia Shoemark
- Bendert De Graaf's personal story and about the BBS Group in the Nederlands and about Project Predict
- Plans for the Ciliopathy Alliance UK over the next few years by Fiona Copeland, Trustee of the Ciliopathy Alliance
Our next webinar is planned for May 2024 - please let us know if there are any specific subjects you would like us to cover.