Privacy Notice

The Ciliopathy Alliance understands that your privacy is important to you and that you care about how your personal data is used. We respect and value the privacy of all of our donors, beneficiaries, supporters, volunteers, staff and other stakeholders. We will only collect and use personal data in ways that are described here, and in a way that is consistent with our obligations and your rights under the law.

About Us

The Ciliopathy Alliance (“the Charity”) is a registered charity in England and Wales (1148034); and a company limited by guarantee registered in England and Wales under number 7842342.

Our full contact details are set out below.

What Does this Privacy Notice Cover?

What is Personal Data?

What Are Your Rights?

What Personal Data Do We Collect?

How Do We Collect Your Data?

How Do We Use Your Personal Data?

How Long Will We Keep Your Personal Data?

How and Where Do We Store or Transfer Your Personal Data?

How Secure is Your Data?

Do We Share Your Personal Data?

How Can You Access Your Personal Data?

Changes to this Privacy Notice

How to Contact Us