Privacy Notice

The Ciliopathy Alliance understands that your privacy is important to you and that you care about how your personal data is used. We respect and value the privacy of all of our donors, beneficiaries, supporters, volunteers, staff and other stakeholders. We will only collect and use personal data in ways that are described here, and in a way that is consistent with our obligations and your rights under the law.

About Us

The Ciliopathy Alliance (“the Charity”) is a registered charity in England and Wales (1148034); and a company limited by guarantee registered in England and Wales under number 7842342.

Our full contact details are set out below.