AGM 21st OCTOBER 2025

cilia, pcd, rare disease, agm, Ciliopathy Alliance, BBS, Alstrom, ARPKD, pkd, usher, jeune, joubert, RP

We held our AGM on Tuesday, 21st October 2025 online.

It was a great oppportunity to welcome our two new Trustees, Audrey Hughes and Rhoda Akilapa. We also spent some time discussing the work we are planning this year.

To read our annual report click here.

To read the minutes of the AGM click here.

Any queries then please contact us.