We are a volunteer led charity and are always looking for extra help. Could you offer your time to help on an ad hoc or regular basis? Would you like to join our Board of Trustees?
Join our community and help us improve the lives of people with ciliopathies.
Get Involved
Volunteering opportunities:
Fundraising and Events
Plan and organise events.
Research Support and Advocacy
Raise awareness about ciliopathies, act as Ciliopathy Patient Representatives on research projects or tell your personal ciliopathy stories.
Communications and Social Media
Help us raise awareness of ciliopathies by using social media and with our communication strategy.
Join our Board
Help us with charity governance and strategy.
Volunteer Stories
Our volunteers make a real difference. Recent volunteers and interns have written patient-friendly material about research, helped with communications and social media, worked on advocacy and engagement, and visited research and diagnostic laboratories to understand the work they were supporting.
Our most recent student interns came from Keele University: each completed 75 hours with us over four months, strengthening our communications, improving advocacy and stakeholder engagement, and making the research content on this website clearer.
Find out more
Tell us a little about yourself, how much time you could give and what you would enjoy doing, and we will talk it through with you. You do not need a science background.