TheRaCil
TheRaCil is advancing therapies for paediatric renal ciliopathies. The project is being carried out by a diverse consortium made up of clinicians, geneticists, biotechnology firms and expert researchers, all looking to progress the current treatments for increased efficiency.
Kerry Leeson-Beevers represents the Ciliopathy Alliance as patient partner for TheRaCil, with the responsibility of ensuring meaningful patient involvement and engagement throughout the duration of the project until 2027.