On the 15th January we took our interns and volunteer,Hannah Knocker, to visit the PCD research labs at the Institute of Child Health and the Diagnostic Labs at the Royal Brompton Hospital.

Here is Hannah's reflection:-

The visit offered valuable insight into both the research and clinical pathways involved in Primary Ciliary Dyskinesia. At the Institute of Child Health, we were welcomed into the laboratory environment and introduced to several areas of active research. We learned about lipid nanoparticle development and characterisation, including how particle size and charge are measured, before being given a clear and accessible introduction to PCD and its underlying biology.

The 3rd Annual Conference – Rare Disease Research UK brought together researchers, clinicians, policymakers, industry partners, charities, and people with lived experience to highlight how collaboration is transforming rare disease research in the UK.